We received patient feedback from families of children with autism spectrum disorder.
My son has grown so much since his transplant, he understands so much more, seems to enjoy every day, and has grown so much more than I ever could have imagined.” He answered, “He has grown in many ways beyond my imagination.
[Profile]
Boy
Disease name: Autism Spectrum Disorder
Transplant period: May 11, 2021 – September 14, 2021
Number of transplants: 3
Medical institution in charge of transplantation: Medical Corporation Yua-Kai Kutei Internal Medicine Clinic
Q1. WHAT MADE YOU DECIDE TO UNDERGO INTESTINAL FLORA TRANSPLANTATION AT OUR INSTITUTE?
When my son was 2 years and 8 months old, he was diagnosed with autism spectrum disorder. At the time, he had a speech delay and was hyperactive and could not sit still for a bit.
I thought that my symptoms would improve if I received rehabilitation, so I went to the rehabilitation garden five times a week. At the rehabilitation center, there were many children who had been diagnosed with autism spectrum disorder, so I often discussed my concerns with their parents. Each child had different problems, such as delayed speech, hyperactivity, picky eating, and sensory sensitivity. However, I was concerned that there were so many children with abnormal bowel movements such as diarrhea and constipation.
I often heard people having problems with constipation, taking laxatives, or having diarrhea or soft stools. I wondered if this had anything to do with autism. My son was not that troubled because he had a bowel movement every two days.
I had done some research and had seen the website of the Intestinal Flora Transplant Clinical Study Group. At the time, I was doing a lot of research on nutritional therapy in books and on the Internet, and thought it might be effective in improving autism, so I visited the Cute Medicine Clinic at the age of 3 years and 8 months.
When I took Biosly, I was surprised that I immediately had yellowish? I was surprised to find that I immediately had yellowish or ochre-colored stools that were very clean. In addition, I have been a bad sleeper since I was a baby, but now I sleep better and have a natural sleeping rhythm. I was very surprised. At that time, I felt that the intestinal environment is very important.
Since then, I have been seeing Dr. Kawai. I have grown in so many ways that I cannot imagine what it was like back then. When Dr. Kawai told me about the intestinal flora transplant, I was very worried. I was cautious because of the high cost, and I was also concerned about the safety of the procedure since I was still a small child.
I was feeling enough growth with nutritional therapy, so it took a lot of courage to try something new there.
I was very worried, but the fact that I had never had any concerns about any of the treatments I had received from the doctor, that he always talked to me from the same perspective, and that I had great trust in him were deciding factors in my decision to undergo the transplant.
We did the transplant and saw a lot of growth beyond what we could have imagined. I am really glad I did it. I am truly grateful to everyone at the Intestinal Flora Transplant Clinical Study Group and to Dr. Kawai.
Q3. HOW HAVE YOUR SYMPTOMS CHANGED AFTER THE TRANSPLANT?
Before the transplant, the patient had a weak sense of otherness, difficulty understanding other people’s facial expressions and feelings, a sense of distance from others, frequent friend troubles, impulsive behavior without thinking things through, talking to herself a lot, difficulty changing her mind, hitting people and things, and lack of independent bowel movements.
During the transplant period, I began to develop a sense of otherness and started calling the names of my teachers and friends.
I am now able to read the facial expressions of others. I can now answer “laughing,” “getting angry,” and “crying” on picture cards.
I am now able to understand a little more about the feelings of others, and I no longer comfort or push my friends if they are crying, which has reduced interpersonal problems. Sudden hugging has also decreased, and he has come to understand the distance between people. My impulsivity has calmed down and I am able to think before I act more often. He responds better when I call out to him, and it is easier for me to give him verbal instructions. He talks to himself less than before the transplant, but he still talks a lot. I am able to change my mind better and no longer hit people or things. I no longer hit myself. The most surprising thing is his independence in defecating. He is now able to go to the bathroom by himself.
After the transplant, his interests have broadened and he seems to enjoy being interested in many things. She is now interested not only in her own interests, but also in what others are doing, watching and imitating them.
This allowed me to sustain the time to concentrate on watching and listening to the teacher’s stories, etc.
They have also developed a sense of independence and have been seen trying to go to the bathroom by themselves and to sleep by themselves. They are now thinking and acting on their own, such as putting on their shoes, washing their hands, and bringing their plates to the kitchen after eating, whereas they did not act without being called.
Q4. IN ORDER TO MAINTAIN THE INTESTINAL BACTERIA THAT BECAME YOUR FRIENDS THROUGH TRANSPLANTATION, PLEASE TELL US ABOUT ANY LIFESTYLE HABITS OR WAYS OF THINKING THAT YOU ARE TRYING TO MAINTAIN AFTER TRANSPLANTATION.
Walking well
…lots of outside play.
Consume meat and fish in moderation
Take root vegetables rich in fiber.
Take good quality oil.
Gluten-free and casein-free
…Avoid processed foods.
Avoid pesticides as much as possible.
Chew well and eat slowly
Soak in the bathtub daily (Epsom salt bathing)
Q5. WHAT WOULD YOU SAY TO THOSE WHO ARE GOING TO HAVE A TRANSPLANT OR ARE UNSURE ABOUT IT?
I think it is best if you have a hospital and a doctor you can trust.
Q6. PLEASE GIVE A MESSAGE TO THE DONOR WHO PROVIDED THE STOOL FOR THE TRANSPLANT.
I would like to thank you from the bottom of my heart in person if I could meet you. Since his transplant, my son has gained so much more understanding and seems to be enjoying every day. Thank you so much for providing this service.
